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141110P - TERMINALLY INCURABLE DISEASES AND EOL DECISIONS

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Presentation at a training program for family medicine resident s at the National Guard Madina 9-10 November 2014 by Professor Omar Hasan Kasule Sr. MB ChB (MUK). M{H (Harvard), DrPH (Harvard) Chairman of the Ethics Committee King Fahad Medical City

 


Concepts

  • Terminal illness
  • Do Not Resuscitate (DNR)
  • Withholding of life support
  • Withdrawal of life support
  • Brain death

Ethical issues in geriatric care:

  • Impaired ability to make informed decisions.
  • Advance statements 
  • Proxy decision makers 
  • In the absence of relatives?
Ethical issues in palliative care:
  • Deficient decision making capacity  
  • Decisions on interventions: nutrition, hydration, pain control, infection treatment
  • Double effect of analgesics
  • Balance between pain control and social life
Ethical issues in disability care:
  • Discrimination
  • Special services
  • Sensitivity training for health care workers 
Decisions for the terminally ill 
  • Withhold or withdraw aggressive treatment that has no nett benefit lasting for a reasonable time. 
  • DNR: Withhold resuscitation in case of cardio-respiratory arrest for patients who cannot get a net benefit from CPR and who will succumb again and have to undergo resuscitation.
  • Withdrawal of life support for brainstem dead patients
  • Withdrawal of life support from patients in irreversible coma: ? futility ? quality of life
  • Decision to donate organs

Issues in decision making

  • Capacity for decision making:
  • Substitute / proxy decision makers: 
  • Advance directives
DNR orders:
  • A do-not-resuscitate (DNR) order is a decision made by three physicians including a disease specialist and the primary doctor of the patient. The family must be informed of the decision but they cannot intervene in the decision.
  • The DNR order is made essentially for situations in which resuscitation is futile and not necessarily for terminal disease per se.
  • The order should specify which procedures are included in the order: intubation and ventilation, chest compressions, ionotropic drugs, gas mask etc. A do not treat (DNT) order relates to treatment of the primary disease condition like cancer when that treatment is considered futile.
Euthanasia 1
  • Euthanasia literally ‘good death’ is causing the death of a terminal patient to save him/her from further pain and suffering.
  • Active euthanasia is an act of commission in which the physician takes an action that results in the death of the patient.
  • Passive euthanasia is an act of omission in which the physician fails to take action necessary to sustain the life of the terminal patient.
  • Both active and passive euthanasia are illegal and healthcare workers who engage in them can be sued for homicide.
Euthanasia 2
  • Euthanasia at the request of the patient and with his informed consent is still considered illegal.
  • The distinguishing feature of euthanasia is the intention behind the action, sparing the patient further suffering.
  • An action than can be considered euthanasia can be deemed legal of the intention behind it is different.
  • Withholding a treatment because it is futile is acceptable but withholding it to hasten the death of the patient to avoid further suffering is passive euthanasia.