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141229P - FAMILY CENTERED CARE: CURRENT AND FUTURE DIRECTIONS

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Presented at the IMANA Convention held at the International Medical Center Jeddah on December 29, 2014 by Dr Omar Hasan Kasule Sr. MB Ch B (MUK), MPH (Harvard), DrPH (Harvard) Faculty of Medicine King Fahad Medical City, Riyadh


HOLISTIC APPROACH TO PATIENT CARE
·        A holistic approach to medical treatment incorporates social, psychosomatic, spiritual, emotional dimensions.
·        It recognizes the role of the family in the providing social and psychological support to the patient.
·        Physicians trained in the biomedical model were reluctant to acknowledge the family’s role in care.
·        This is changing towards recognition of the family as a part of the therapeutic process.

THE FAMILY AS PART OF HOLISTIC CARE
·        Family members are involved in medical decisions when they act as proxy decision makers.
·        They can be donors of organs and tissues.
·        They help the patient experience a home ambience during their visits to the hospital.
·        Family visits are a social obligation and are encouraged.
·        The neuro-humoral-immune axis in patient care

FAMILY AS GUESTS OF THE HOSPITAL
·        Family visits are a social obligation and are encouraged
·        The family members are honored guests with all the shari’at rights of a guest.
·        The family members are honored guests with all the shari’at rights of a guest.
·        Family visits should not interrupt routines and procedures

PROVIDING FOR THE NEEDS OF THE FAMILY
·        While the physician understands the role of family support for the patient, he may not realize that the family is also in need of care and support.
·        The family needs psychological support; they are anxious and worried.
·        They need reassurance about the patient’s condition without breach of confidentiality.
·        Caregivers must avoid involvement in family conflicts.

FAMILY INVOLVEMENT IN TERMINAL CARE
·        Comfort: pain relief, communication, hygiene, wudhu all the time
·        'Ibadat-friendly hospital
·        Spiritual preparation: allay anxiety, present death as a positive event
·        Legal preparation: debts and a will
·        Prepare family for mourning

WHAT FAMILY-CENTERED CARE IN PEDIATRIC UNITS
·        Scope
·        Family visitation;
·        Family-centered rounding;
·        Family presence during invasive procedures and cardiopulmonary resuscitation;
·        Family conferences
·        Although challenges to successful implementation exist, the growing body of evidence suggests that PFCC is beneficial to patients, families, and staff. Meert KL1, Clark J, Eggly S. Family-centered care in the pediatric intensive care unit. Pediatr Clin North Am. 2013 Jun;60(3):761-72.

FUTURE CHALLENGES
·        The future of the family’s role in care is threatened by several factors.
·        A high technology hospital environment discourages family involvement in providing social and psychological support. 
·        There is less time for family members to be involved in patient care because of lack of time due to their work commitments.
·        The transition from a large extended family to the smaller nuclear family also means that there are fewer family members available to provide social support to the patient.
·        Rising divorce rates and family break-up threaten the family’s role as a cohesive social support network.

THE TAUHIDI PARADIGM
  • Lack of integration due to atomistic view of the cosmos: analytic but not synthetic
  • Integration is not addition but is fitting according to the laws, sunan
  • The tauhidi paradigm provides a conceptual basis for integration.
  • Integration calls forth balance among the components integrated