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110613P - ETHICAL ISSUES FOR A PATHOLOGY MUSEUM

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Professor Omar Hasan Kasule Sr. MB ChB (MUK), MPH (Harvard), DrPH (Harvard) Chairman of the Institutional Review Board


1. CONFIDENTIALITY: specimens displayed in the museum should not have any information that identifies the person from which they were obtained. Also information identifying the family, the tribe, or any social group that may lead to negative impressions should not be disclosed. For purposes of medical education essential information that relates to disease etiology, treatment, and prevention. This includes information on age, gender, ethnicity, occupation, and some disease exposures such as smoking and occupation.

2.0 INFORMED CONSENT: Consent must be obtained from the owner of the specimen displayed or his legal representatives if he is dead or he is a minor. Consent is needed for major specimens like whole bodies, organs, and major parts of organs like the brain, the eye, a bone etc. If the specimen is just a microscopic slide of a tumor tissue no informed consent is necessary.

3.0 HUMAN DIGNITY: A human being is dignified living or dead. This also applies to any human organs or tissues that are put in the museum. They must be handled with respect as befits human dignity. When no longer needed, they should be buried properly. During preparation of the specimens for display parts may be discarded as not needed. These should be buried properly and not disposed of in any way that may be dishonorable to a human such as throwing them into trash where they can be eaten by animals.

4.0 HOW SPECIMENS ARE OBTAINED: The museum must make sure that the organs and specimens used were obtained in a legal way. Specimens that are obtained by theft, deception, or illegal procedures such as illegal abortion cannot be accepted in the museum to close the door to evil under the doctrine of sadd al dhari'a.